Sunday, July 24, 2011

DiGeorge & Sean

Hi you all, 
              So glad it's the last and final week of July. It's been one heck of a crazy month and I hope August is a bit easier with all of the Doctors appointments we have going on. Getting ready for Sean's Junior year of High School which is hard for me to believe that he's almost done. We got to get cracking on the math and a few other things and all of my teacher friends if you have suggestions those would be welcome but remember I have done so much for Sean and usually do know what to do for school year just nice to get some suggestions from others once in a while. Usually that's from Pam and love her for always being supportive. I wanted to say I appreciate you all so much and for those who have lent an ear when I've needed to vent. The good news is that Sean has over come so much and we are so proud of all the accomplishments and are looking forward to more.
We are taking him back to Nova and for the Nasendoscopy and some more Dental work this week will fill you all in about that when we get back. The Nasendoscopy will be final for what surgeries needed to be done about the "Vellum," that isn't connected and if the flap behind the nose isn't connected. Looking forward to all of those answers with in the next month. Isn't it amazing what God can do through so many circumstances? Josh it looks like Destination Truth had a blast at Comic Con this weekend. Sean has been talking about that all week and talking about what kind of Conventions and things he will have when he has his own Studio.Hope you all have a wonderful and blessed week. Most of all stay positive.
Love to you all,
Sean,Tricia, and Pat

Thursday, July 21, 2011

Hey you all just letting you all know that Sean has done really well now with going to Speech Therapy and Occupational Therapy. Miss Kris has a new IPad application for his Speech program and Sean has figured out how to use it in use 2 sessions with the new program that Miss Kris has for him now. He's supposed to say the word then make a sentence well he knows how to go back look at what the sentence is supposed to be then he will say the sentence. I looked at Kris and she just laughed at that whole deal with Sean. It was just to funny today. Miss Kris went to Boston last week for Speech Training and was showing us pictures and he was more interested in talking about the crazy neighbors and what he's going to do about them.lol! We both just laughed at him today. Occupational Therapy he got really serious and was happy that he was going to be able to work on his muscles. She had a long type of pole or pvc pipe that had rubber weights on the end and he thought that was just cool. Miss Shannon had him do hand weights, wrist weights and he even got to play with Therapy play dough.  So we got lot's of  Homework for him to do. They have really come a long well since the early day's of Speech, Occupational Therapy and so on. It just amazes me and Sean picks up on it really well. I'm so proud of him. Thank you Miss Kris and Miss Shannon, Miss Aida and all who work at the Therapy place here in Lehigh Acers you all are very special to Sean and I.