update on Sean

Hi Everyone, Okay there seems to be some confusion as to what is going on in Sean's life. So I will fill you in from the age of 10. Most of you know the Doctor's considered Sean as Developmentally Delayed from Birth to 10 years old. Dr. Ritorosky did all he could for Sean until the age of 2. We then went to Dr. Withams out in LaBelle who wasn't much help and from there we went to Island Coast Pediatrics and Dr. Troast just wouldn't do tests or any thing to help Sean at all. This frustrated me because know one wanted to help Sean even though the Doctor's could clearly see there were major issues and one being that he couldn't speak. Dr. Donaldson and the CMS Team at Lee Memorial Hospital just didn't know enough of what was going on with Sean and wouldn't listen to me to get the Test or surgeries needed for Sean. Finally Dr. Lee is the one who stepped up to the plate and said this is what we can do. We went to Gainesville which is where he had the first dental surgery done. Wasn't a compelete success but had another FISH Test done which was the Genetic Testing that needed to been done for DiGeorge Syndrome that know one would tell us about. It's very frustrating as a Mother knowing that know one wants to help your child. That included all of the dentist who were afraid to touch him for fear of something happening in the middle of a procedure. We learned a lot through Gainesville and they were helpful to a point but it finally took Dr. Stelinki from Fort Lauderdale to help Sean. He is having his teeth fixed and just had a procedure done that is called Videoflourdescopy in which we found out that the "Vellum," was not connected at all. He will be going to have the Nasendescopy done in July to find out if the flap behind the nose is either connected or not. It takes time to find out all these things that are going on and if you don't have Doctor's who are willing to help your child you have to keep digging and find one who will. There are know support groups for DiGeorge Syndrome, Velocardiofacial Syndrome or 22q11 Deletion in Lee County or Surrounding areas you have to go to either to Miami, Orlando, Gainesville, or Jacksonville. Sean has done really well and what you all need to understand is that he has certain limitations on things that he can and can not do not that Momma isn't teaching him. Sean was bullied in public school on top of the issues we have been dealing with his Daddy. So lots of things going on that some of you just don't know about. We do the best we can with what Doctor's we have and you can't put all Children with disabilites or Special Needs in the same basket they are all different and learn in different ways. I'm so proud of the things Sean has accomplished in his short life. I don't trust Sean with just any body because of the bullying issues and until they get services in Lee County for Sean I will continue to Home School Sean and teach him about God in the only way I know how. Just because some of you are Certified Teachers doesn't mean you know all about Sean.